Vasculitis possibly my problem

[Wrknrvr]

    So I have been have eyesight problems since the summer of 2020.    I have posted my experience under the heading Being diagnosed with Macular Degeneration.   But has that been true from the beginning. 

   I will say that without the internet I would still be getting shots in both eyes.

   My Ophthalmologist is rather perplexed as to my condition and my experience in my recovery.

 

  So I am going post a link to a actors experience with possibly the same disease.

 

  Actor Ashton Kutcher's rare autoimmune condition

 

  If you search this heading you can find what can happen with this disease. With research about it you can see that it is sorta rare. And it can affect people differently.

   It is possible that I should see a  rheumatologist.

[justRich]

You have to understand that a "diagnosis" is required for billing insurance.
There is no such thing as "I don't know" in the medical world.

I've been diagnosed with "vasculitis" for an allergic reaction by my primary care physician.   Another "specialist" diagnosed the same reaction as something else.

You've done well in trouble shooting your condition.  Doctors are simply humans doing a job.

 

[Chalkie]

1 hour ago, Rich&Sylvia said:

Doctors are simply humans doing a job.

And like all humans some are better at it than others. There is reason it is a medical "practice".

[Kirk W]

5 hours ago, Chalkie said:

And like all humans some are better at it than others.

Also some are exceptionally skilled while some are incompetent. To me, the worst part is the reluctance of nearly all doctors to speak up about the incompetent ones. And they also tend to shun any nurse who dares to report them. 

[sandsys]

I recently had an incompetent anesthesiologist. He couldn't figure out that the reason the medicine wouldn't go through the IV is that I was lying on the tube. It got caught during my transfer from gurney to surgical table and no one noticed. He tried putting a second port into the same tube but, obviously, that didn't work either. He finally put a tube in my other hand and that worked but he pushed the medicine in so fast he caused me a lot of pain. So far, his is the only bill sent to our insurance company for that surgery. I hope they refuse to pay it.

Linda

[Randyretired]

We had neighbors that were both nurses at the largest hospital.  When needed we asked them who were the good doctors. Years ago I went to the ER for a severe stomach pains.  The ER doc said it was  bug that blocked movement and the next day I felt better.  Still he brought in a specialist and he was talking surgery.  I asked the neighbor and she said no no no.  He always wants to cut and problems follow his patients.  She said he is probably the worst doctor at the hospital.

[Chalkie]

2 hours ago, Kirk W said:

Also some are exceptionally skilled while some are incompetent. To me, the worst part is the reluctance of nearly all doctors to speak up about the incompetent ones. And they also tend to shun any nurse who dares to report them. 

Yes, and unless you can get word of mouth from someone it is hard to tell which is which. Years ago my daughter literally from one minute to the next became paralyzed from the waist down. Needless to say she was rushed to the ER and had it not been for a very good ER doctor who ordered an MRI that covered an area larger than what the symptoms would have suggested. That MRI revealed that she had MS and the paralysis was the first visible symptom. He was one of the good ones. 

[Wrknrvr]

    I will say my ophthalmologist is quit interested in what I am doing for my treatment. He was sorta disappointed that we were headed south east for the winter. But I am going to go into his office this week and give him some more info I have found about willow bark. And it’s medical use. I need to pickup my records from the last two visits.

   Now I have found some info from the Mayo Clinic, the National Institute of health and a few other good sources, that does explain how it could work. There is some studies that have been done in the last 15 years. And some info does show that works on some vascular problems.

 

  Let me say that reading and trying to understand medical wording is rather confusing.

 

  Will post a link to some info later.

[Wrknrvr]

Although anti-inflammatory activity is mostly attributed to salicin ⁽¹³⁾, the main bioactive compound in willow bark, catechol and flavonoid compounds have also been found to be responsible ⁽¹²⁾. Willow bark inhibits pro-inflammatory cytokines TNF-alpha and COX-2, and nuclear translocation of the transcription factor NF-κB ⁽¹⁾. It was also found to significantly raise low glutathione levels, thereby limiting lipid peroxidation ⁽¹⁴⁾.

Antiproliferative effects in human colon and lung cancer cells are due to growth inhibition and apoptotic induction ⁽¹⁵⁾. In vitro and animal models suggest that salicin can inhibit ROS and ERK signaling pathways to produce antiangiogenic effects ⁽⁴⁾.

[Kirk W]

14 hours ago, Chalkie said:

Years ago my daughter literally from one minute to the next became paralyzed from the waist down.

Our experienced wasn't quite as bad but scary, none the less. When our youngest son was about 10 he injured his wrist in PE at school and we took him to the doctor that we had been using where the nurse xrayed it and finished developing the film just as the doctor returned from lunch. Having spent 8 years in the Navy I can recognize a drunk and our doctor was far down that road. The nurse read the xray and splinted our son's wrist while the doctor staggered about, returning to his office to wait for his next patient. We did have a second doctor look at it who commended the nurse for his work. What really upset us was that we were active in a Cub Scout pack that had 2 doctors involved who we knew socially. When we told them of the incident and that we were changing doctors, both admitted that it was common knowledge in the medical community but nobody wanted to be the one to go public. Shortly after that our former doctor left practice to go dry out and I had a chance to speak with his nurse about it and she told me that she was hinting to patients as best she could but that had she gone public no medical facility would ever hire her again. I don't see any evidence that anything has changed since.

[DJohns]

Doctors, lawyers and politicians mostly cover for each other in the end. Ever try to sue a lawyer, you will loose.